Don’t let the fear of other people’s thoughts grip you.
It’s their thoughts, not yours, so does it matter to you anyway?
No, the average person doesn’t deal with these things.
But everyone, every single person, has their own battles they face. Though the battles of someone with CF are great, it is our perspective that determines the effects they can have on our relationships with others – in this context, on our relationships with potential partners.
I think many of us with cystic fibrosis (CF) have built up emotional walls around ourselves.
They are our shields blocking the unwanted invasions from people’s judgment, perhaps even people’s concerns.
In addition to the forums, the site contains information on clinical trials, gene therapy, testing, associations, research and events.
It’s caused by a mutation (change) in a single gene called the Cystic Fibrosis Transmembrane Conductance Regulator (CFTR.) This controls the flow of salt and fluids in and out of your cells.
live with cystic fibrosis (CF.) Doctors diagnose about 1,000 new cases each year. It can also cause severe lung damage like cysts (fluid-filled sacs) and fibrosis (scar tissue). If the CFTR gene doesn’t work like it should, a sticky mucus builds up throughout your body.
Normally, these are very thin and slippery to keep systems in your body running smoothly. If you only inherit one, you won’t have any symptoms. That means there’s a chance you could pass it on to your own child one day. Every time two CF carriers have a baby, there’s a 25% (1 in 4) chance that their baby will be born with CF.
“Normal” people don’t always cough, they don’t have to deal with taking medications in front of someone on a date they don’t quite know yet.
They don’t have to deal with that first tune-up hospitalization after you have been seeing someone new for two months and they feel uneasy or even panic, thinking there is something horribly wrong.